Fibromyalgia

My Symptoms and experience with fibromyalgia

Oh my god fibromyalgia is terrible, when will it end? Ok I’m sure you get that lol, I just wanted to lighten the mood on this grim subject. This causes me pain all over and causes me to be uncomfortable along with some very inconvenient things to happen.

I can’t sleep good and one reason isn’t even pain, its temperature. You see I’ll have just gotten into bed to sleep and I throw the covers off. My husband says “what’s wrong”?  ” I say it’s
hot in here even though the fan is on”. So what’s the big deal?

Everyone has gotten hot before. Well it’s not that simple. I roll over and try to sleep, still burning even though the room isn’t really hot.

Then I  realize hey I’m still hot, “ugh”. I’m getting frustrated now so I take my nightgown off and roll over. My husband says “are you ok” asking me again because I won’t stay still.

I tell him I was hot so I took my nightgown off and he has already recovered his half of the bed up because he’s not hot. So I lay down and that should be the end of it right? Nope, not by a long shot. So here I lay trying to sleep, then I realize I have another issue and it hasn’t even been 5 minutes or it doesn’t seem like it anyways.

The issue is I’m cold now, in fact I’m shivering. I then sit up and fumble around to feel where I tossed my nightgown in the dark so I don’t wake my now sleeping husband. I put it on and cover up hoping to warm up. I leave the fan alone so my husband stays asleep.

I lay there shivering till I feel hot again. I’m just not happy. On top of all this, my hips, back, wrists, and feet are hurting too and I can’t get comfy so I toss and turn a lot. I usually end up doing this over and over until I fall asleep. This stuff is all day long too. I get tired when I shouldn’t be, which is known as fatigue, hot and cold flashes, pain all over all the time.

I get headaches and have IBS which is irritable bowel syndrome. When I get these headaches I also get nausea. It also has been a pain getting diagnosed too. I mean for years I kept getting either I don’t know answers for pain or other diagnoses which is part of having fibromyalgia but it’s just so frustrating not having a diagnosis or any clue what to do about it since you don’t know what you have.

I ended up getting diagnosed 10 years after all this pain started at a rheumatologist office after getting blood work to see if I had Rheumatoid Arthritis which I don’t. My podiatrist referred me there which was about time one of my doctors did something right.

However I have found relief for this and my other chronic pain issues too which I will share with you in another section so don’t throw the towel in yet lol. Relax this isn’t the end but this is the end of this section of this page. If you scroll you’ll see more so please stay with me here, I hope that wasn’t too boring.

What is fibromyalgia and what causes it?

Fibromyalgia syndrome is a musculoskeletal condition and it’s the most common one after osteoarthritis. Fibromyalgia is considered a syndrome because it has a set of symptoms and when they exist together they imply that you have a specific disease or an increased chance of getting it.

Over 15 million americans have fibromyalgia and most of them are women between 25 and 60 years of age.  What causes fibromyalgia remains a mystery to doctors however genetics, infections and post traumatic stress disorder have been linked to fibromyalgia.

I hope this helps to answer your question and I will update this if doctors ever figure out the cause. 

 

What are the symptoms of fibromyalgia?  

Here is your fibromyalgia symptoms checklist in various categories below: fibromyalgia-symptom-graphic

Main Signs of Fibromyalgia

  • Painful Tender Points
  • Deep Muscle Pain
  • Morning Stiffness  

Other Major Signs of Fibromyalgia

  • Sleep Problems
  • Fatigue
  • Anxiety

 10 Most Common Signs Fibromyalgia

  • Fibro Fog – Memory and Concentration Problems
  • Irritable Bowel Syndrome – IBS
  • Fatigue
  • Headaches
  • Numbness with Tingling in Legs, Feet, Arms and Hands
  • Pain
  • Painful Menstrual Cramps
  • Urinary Symptoms Including Frequency or Pain While Urinating
  • Tender Points
  • Depression

What is the treatment for fibromyalgia?

Here are 4 drug free ways you can relieve your fibromyalgia pain.

  • Deep Water Aerobics – Deep Water Aerobics consists of several exercises that help with range of motion and burn calories so you’re not stiff but if you want a more in depth explanation then please visit my Deep Water Aerobics page.
  • Massage Therapy
  • Aromatherapy
  • Melatonin

If you would like more detailed information about treatments then will you please check out my Remedies For Fibromyalgia page.

How have you found relief for your fibromyalgia?

Well at first I didn’t do anything at all. I didn’t want to move. All I felt like doing was being a couch potato or staying in bed in agony. Doing nothing wasn’t helping one little bit. In fact I felt worse until finally I decided that I needed to follow my doctor’s advice which I didn’t put much stock into.

Dr Agnew my podiatrist suggested I go to deep water aerobics classes along with some strength training for the rest of my life. He was telling me to exercise which is the exact opposite of what I felt like doing. I know right?

I love exercise though because I used to do it, but with all the pain I had no desire to do so. So I really and truly understand how you feel right now. I did some reading about Deep Water Aerobics and looked up Aqua belts which is what you need to do Deep Water Aerobics.

I ended up ordering Aqua Jogger Classic Belt-Blue on amazon and I also bought some Water Shoes called Speedo Women’s Hydro Comfort 4.0 Water Shoe. I’ve also started taking Source Naturals Fibro-
Response
which has helped me immensely. All of these things combined is what has helped me with my fibromyalgia symptoms. If you would like to know about the Aqua Jogger then please click here to read my review.

If you would like to know more about how deep water aerobics can help you then please check out my Deep Water Aerobics Page or if you’d like to know about other exercises you can do then please check out my page about exercises for fibromyalgia. Please keep in mind that you should always ask your doctor before starting any new supplements and or exercise program and that not all products work the same for everyone but you won’t know until you try, also natural products won’t hurt you but still ask your doctor anyways. I hope you find some relief soon like I have.

 

12 thoughts on “Fibromyalgia

  1. Winny

    Hi there,

    Luckily, I don’t have fibromyalgia. I have never heard of it either, but great info on that. Now I know what it is, what symptoms you have and what to do against it.

    I like your introduction, how you told about yourself. Its a great segue.

    What you can do better is your spellings, especially “a lot”. You always wrote “allot”. You also once said “to boring” instead of “too boring”

    I see that you are still working on a couple of pages.

    Otherwise, I think thus far it’s great 🙂

    Reply
    1. Sheena

      Thank you so much, I’m glad I was able to teach you something new and thanks for pointing out some mistakes I made on this blog page. I fixed them. I’m sure most bloggers make mistakes as we’re all human and I have seen plenty. I will finish my other pages, however websites grow and there will always be more pages and posts to make.

      Reply
  2. Flo Sacoco

    I have fibromyalgia. After years of waking up in pain 4 no apparent reason I went to my doctor. I’ve been to many doctors since then. They gave me pills that made me sick or didn’t know what to do with me. I’ve had X-rays cat scans MRI’s blood tests & physical exams. The tests show I’m very healthy. The only outward appearance of my condition is parts of my body are tender to the touch. So there for I’m on my own. It’s awful. I want to live life. But how do I function with pain? Im my own doctor now. I have no choice. Also I’ve been approved for a medical marijuana card and have high hopes for relief from pain with cannabis. Water sports are impossible because of price, pain and no prescription among other problems. We need to start with easy at home remedies til we are strong enough to do other things that take time money and energy.

    Reply
    1. Sheena

      Yes I do agree about the money part. Not everyone can afford these things. There’s supplements as well and other exercises I plan on discussing here too and I’m open to any other suggestions as well. I’m not on any medicine for fibromyalgia either so even if I didn’t prefer natural treatments I really have no choice, right now I’m on disability and don’t have a lot of money either but around here I do get the ymca that is based on income for $20 a month. I called several places for this class and this is the cheapest one I found. They offer it everyday, if I wanted to go every day I could but my doctor recommends me to go 3 days a week. It actually helps. You might have to call around to see what you can afford. There’s also home exercises you can do too that might help along with some supplements. Everyone is different in how the are affected by these conditions. I get the tingling every morning. I’m always the opposite temperature from everyone and I’m always sore but it’s not as bad as it was. I do still suggest deep water aerobics because its low impact. It’s the lowest impact on your joints there is when it comes to exercise. You can go at your own pace too. You can just float if you get aggravated. Anything can be modified to work for you but it’s not for everyone which is why we have to discuss more than one way. What are your particular ideas?

      Reply
  3. Carla

    Hi there,
    Wow this was certainly informative as I have a friend with fibromyalgia so I understood a reasonable about it.
    I looove the way you not only speak in the first person you also give “Solutions” and even better that they are NATURAL Drug free options which is what sufferers need.
    You are proactive and don’t just give in to all the aches and pains that are obviously part of life with those suffering from FM.
    I thought it may work a little better however if you maybe started the page with the section “What is FM and what causes it?” Why I say this is it is a little heavy reading all the symptoms that you have to put up with first up and yet you have to read through it all to even start to know why, which if like I said it was changed around a reader will get to the crux of the matter especially if they’re researching information on someone else’s behalf. Also if you are a sufferer you already know all the issues involved and would hopefully be looking to you for the solutions .
    I have a question whether rebounding on a cellerciser or similar would be a good option for exercising for someone with FM?
    However although I have said this I believe you are doing an AMAZING job on this and I wish you all the best.

    Reply
    1. Sheena Post author

      Wow, thank you so much for the constructive criticism and complements. How ever that is the first thing I put after my experience with it. The list of symptoms is after that. As for that particular exercise I don’t know enough about it but if it benefits people like me and your friend I’ll add it to the site as well as edit this comment. Thank you for giving me your perspective on this matter.

      Reply
  4. Sofia

    Hi,
    I have heard of fibromyalgia and it doesn’t sound fun.

    Unfortunately, some conditions are of unknown cause.

    However, sometimes people are nutrient deficient in one area or another. Have you searched on what area you may be deficient in?

    I think I read somewhere that being magnesium deficient can increase the likelihood of fibromyalgia.

    That’s great you are able to manage your symptoms.

    Sofia

    Reply
    1. Sheena Post author

      Yes I have been checked by my doctor and he knows what I’m doing to manage it. You’re right about magnesium and I wrote about it on my remedies for fibromyalgia page. I’m hoping others will read my blog and get some ideas on what they can do. Food has a huge impact on how you feel. Thank you for stopping by and if you have any questions then please feel free to ask.

      Reply
  5. ches

    I think, out of all the exercises that can be done, those to do with swimming and aquatics can’t be beaten. There is no stress on the joints but all the muscles can still be used. You have done a good job in going through all the benefits of this kind of exercise.
    Unfortunately for us here out in the sticks of Wales, UK, there are no really good swimming pools around. We do have a spa pool in the local hotel, but that is only 3’6″ deep which is no good for my 5’11” frame!
    PS. I think you could add one more to your arsenal of drug free ways of treating fibromyalgia – Magnesium. Check it out, could be worth another post!
    Great article with plenty of info. Ches

    Reply
    1. Sheena Post author

      Thank you very much. I’m sorry there aren’t any deep pools for you out there, perhaps you could try some other remedies to at least get some relief. Thank you for suggesting magnesium. You’re right about that, however I already listed that on my http://natural-chronic-pain-relief.com/natural-fibromyalgia-remedies page which I put a link to on this page. I love magnesium. It helps a lot. I get mine in epsom salt baths. What do you do?

      Reply
      1. Ches Power

        I take 600mg per day of MgCl2 which is very bioavailable. I put the days liquid doses into a litre of water and take it throughout the day. I don’t know if I had fibromyalgia because I never go to a doctor but whatever I had, it’s completely gone including fatigue, headaches, sciatica, muscle spasms, eye twitches, digestive disorders, insomnia, depression, brain fog, anxiety. My whole mood is different. I’m clear headed and calm with no aches or pains anywhere. That’s all I take and I’ve been taking it daily for 18 months now. I’m not on any medication at all. I’m coming up 70 and I can do more than most people of 50! I just wish everyone with these symptoms could feel as fit and well as I do. Ches

        Reply
        1. Sheena Post author

          Wow that’s awesome, I may try that too. It can’t hurt. I’m glad you feel awesome. I have all of those issues, although its not as bad as it was before with everything I do. Everything we ingest as well as what we do for exercise really has a huge impact. I’m not on any pain medication either from the doctor. I prefer natural as always. The doctors give you chemicals we were never meant to have, then people wonder why their liver and kidneys don’t do well or they age faster. 70 wow I hope you keep feeling great. My grandparents are that age and if they took care of themselves I think they would feel a lot better too. Maybe one day they will change hopefully. You’re so sweet for wishing that. I wish that too. I think I’ll add your idea to my regimen and see what happens. Thank you for sharing your experience with me and anyone else who reads.

          Reply

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